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I spent Christmas night watching her lie on the couch and tremor, while her pulse was hovering around 200, she had silent seizures, and she was partially unresponsive. It’s been like this for months now, and it was pretty bad with the building symptoms before that. I just need a path, because we...
I just went and read some. I wasn’t aware this was available. It seems like it could be a solution, without me needing to control anything. I’ll definitely call tomorrow. Thank you.
Thank you! I’ll ask her about it. I was trying to avoid power of attorney, because I really truly don’t want to take her control. I didn’t know there were limited types. We’ll look into this.
I’m honestly a little worried that they are just going to let my kid die. This is getting scary, and we’re being locked out. I reach out for help, and anyone outside the circle of those that have dealt with this automatically assume it’s you as the parent, as above. “Is it just you?” That’s...
She’s in the middle of established care for a brain tumor. It’s not really one that is easy to just switch out her care team. I’ve already looked at that option. It’s also a common attitude. I was talking to two other parents, just this morning, going through the same thing. We need a way to...
Talking to other parents in our autism groups, this is something that most of the parents have struggled with, after their child turns 18. There is an attitude that young adults don’t really want their parents with them for medical consults. I’m trying to be very careful to let her ask the...
My 20 year old daughter has been having serious health issues. She’s already on spectrum, and now she’s having cardiac, seizure and other issues that her doctors feel indicate a possible brain tumor. Several of her doctors refuse to let me go back with her, even when she gets a lot of anxiety...
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