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possible malpractice-side effects from depo-lupron injections

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lacking

Junior Member
arialWhat is the name of your state? Illinois
I am a 28 yr. old female. Last year I went to a gyne for ongoing problems with my menses and daily abdominal pain. I was diagnosed with PCOS (polycystic ovarian syndrome) and my gyne sent me to an endocrinologist who confirmed the PCOS but said I shouldnot be having daily severe abdominal pain and told me to go back to my gyne. The gyne did an ultrasound which came back normal. The gyne told me she "suspected" that I had endomitriosis and started me on depo-lupron injections. I had 3 injections over a 3 month period. My pain became worse to the point of incapacitating, the gyne told me she did not know what was wrong with me and wanted me to have a 2nd opinion with one of her peers. I went to a gyne at a different hospital for my 2nd opinion, the gyne told me that I did not have endo, if i did the pain would have been gone after 3 injections. The 2nd gyne told me that I had severe damage to the pelvic cavity and pelvic muscles, the abdominal pain was so severe that he agreed that I was temporarliy disabled, the gyne told me I would need to go to physical therapy. The PT diagnosed me with chronic pelvic pain and nerve damage. It has been over 4 mos since my last depo-lupron injection and I have been back on birth control to regulate menses for over 4 mos. Even with PT my pelvic pain is getting worse. The biggest problem is that I am unable to become sexually aroused at all, unable to feel any sensations of arousal in the vaginal area. So not only did the 1st gyne treat me with injections for something she wasn't positive I had or do the tests for endomitriosis (laproscopy or mri), my pain is getting worse and I am unable to become aroused at all. I went to my new gyne today and told him about this, even though he is not the doctor who gave me the injections, he would not go near the depo-lupron subject. The gyne told me it was because of stress and pain that I could not become aroused. I argued and told him that I had done research and found that depo-lupron was hurting women and that I was unable to get any sensations at all in the vaginal area. The gyne told me to seek counseling for stress and arousal would eventually come back. I know my body and believe that the depo-lupron has caused these problems. Would I have a case against the 1st gyne for treating me for something she didn't do tests for to make sure I had but now my pelvic pain keeps getting worse and all arousal senses are gone after being off the shot for 4 mos and back on birth control receiving estrogen.
 


rmet4nzkx

Senior Member
lacking said:
arialWhat is the name of your state? Illinois
I am a 28 yr. old female. Last year I went to a gyne for ongoing problems with my menses and daily abdominal pain. I was diagnosed with PCOS (polycystic ovarian syndrome) and my gyne sent me to an endocrinologist who confirmed the PCOS but said I shouldnot be having daily severe abdominal pain and told me to go back to my gyne. The gyne did an ultrasound which came back normal. The gyne told me she "suspected" that I had endomitriosis and started me on depo-lupron injections. I had 3 injections over a 3 month period. My pain became worse to the point of incapacitating, the gyne told me she did not know what was wrong with me and wanted me to have a 2nd opinion with one of her peers. I went to a gyne at a different hospital for my 2nd opinion, the gyne told me that I did not have endo, if i did the pain would have been gone after 3 injections. The 2nd gyne told me that I had severe damage to the pelvic cavity and pelvic muscles, the abdominal pain was so severe that he agreed that I was temporarliy disabled, the gyne told me I would need to go to physical therapy. The PT diagnosed me with chronic pelvic pain and nerve damage. It has been over 4 mos since my last depo-lupron injection and I have been back on birth control to regulate menses for over 4 mos. Even with PT my pelvic pain is getting worse. The biggest problem is that I am unable to become sexually aroused at all, unable to feel any sensations of arousal in the vaginal area. So not only did the 1st gyne treat me with injections for something she wasn't positive I had or do the tests for endomitriosis (laproscopy or mri), my pain is getting worse and I am unable to become aroused at all. I went to my new gyne today and told him about this, even though he is not the doctor who gave me the injections, he would not go near the depo-lupron subject. The gyne told me it was because of stress and pain that I could not become aroused. I argued and told him that I had done research and found that depo-lupron was hurting women and that I was unable to get any sensations at all in the vaginal area. The gyne told me to seek counseling for stress and arousal would eventually come back. I know my body and believe that the depo-lupron has caused these problems. Would I have a case against the 1st gyne for treating me for something she didn't do tests for to make sure I had but now my pelvic pain keeps getting worse and all arousal senses are gone after being off the shot for 4 mos and back on birth control receiving estrogen.
Well this is not the only place you have asked this question? PCOS and other gyn disorders can be very tricky to treat and there are a number of approaches to treatment. You were referred quite rightly to an endocronologist. Libido can be affected by many factors even though you associate it with this treatment doesn't mean it is linked to this treatment. Have you had blood tests run to determine deficiencies? Do you take vitimins and supplements? Have you had DHEA levels tested? What Rx are you taking for PCOS? What medications do you take for anything? Are you on BC?

"Health: depo-lupron affecting sex drive, possible lawsuit

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lacking depo-lupron affecting sex drive,...
Author: lacking
Discussion: Health: depo-lupron affecting sex drive, possible lawsuit
Date: April 13, 2005 7:11 PM
Subject: depo-lupron affecting sex drive, possible lawsuit
I hope someone can give me some answers here. my previous gyne suspected I had endomitriosis and gave me 3 injections of depo-lupron over a 3 month period. after 3 months my pain was worse,the gyne told me she did not know what was wrong with me and told me to get a 2nd opinion. Now, I already do have PCOS but my pain is consistent. my gyne did an ultrasound but never did the mri or laproscopy to see if I definetly had endo. she just started the injections. I changed to a different gyne who told me I did not have endo,because if I did,after 3 injections I would not be having pain, I was then diagnosed with chronic pelvic pain and am in physical therapy. It has been over 4 months since I had the last injection and I have been on the ortho-evra patch for over 4 cycles. I main problem is that my sex drive is completely gone, I cannot become aroused or have an orgasm even by clitoral stimulation, I do not have any feeling at all in the vaginal area with arousal stimulation. I need to know If this is common after depo-lupron and will go away or if I have grounds for a malpractice lawsuit. The gyne did not even do the tests for endo, just assumed and started injections, it turned out that I dont have endo after all, and now I am unable to become aroused or have orgasm. I am seeing my new gyne tommorow to discuss this. But I know that doctors will cover for each other and even if I have grounds to sue he won't tell me, i am only going to him tomorrow so that it is documented in my chart. If anyone has advice for me on this please respond"
 

pulse

Junior Member
Hormonal treatment alone is unlikely to cause permanent "nerve damage". I'd also be careful about saying that a "PT diagnosed me", PT's give therapy, they are not permitted to diagnose, the reason for which is seen in your post.

I think laparoscopy is invasive and MRI expensive so a trial is worthwhile, especially since what you describe is not the usual side effect. Maybe it should have been stopped sooner, but she did the right thing by referring you. I don't think you have much of a case.

good luck
 

rmet4nzkx

Senior Member
pulse said:
Hormonal treatment alone is unlikely to cause permanent "nerve damage". I'd also be careful about saying that a "PT diagnosed me", PT's give therapy, they are not permitted to diagnose, the reason for which is seen in your post.

I think laparoscopy is invasive and MRI expensive so a trial is worthwhile, especially since what you describe is not the usual side effect. Maybe it should have been stopped sooner, but she did the right thing by referring you. I don't think you have much of a case.

good luck
OP has not answered any questions, with Dx of PCOS hormones are still out of normal limits. It doesn't appear to be any mal-practice.
 

ellencee

Senior Member
Sweet Mother of God...I can not believe what I just read!
No sex drive because she's been in severe, disabling abdominal pain for, what? close to a year? Like her abdomen could really enjoy the ride.

Get off all of the hormones, lady, and let your body's hormone regulatory system heal.

EC
 

rmet4nzkx

Senior Member
ellencee said:
Sweet Mother of God...I can not believe what I just read!
No sex drive because she's been in severe, disabling abdominal pain for, what? close to a year? Like her abdomen could really enjoy the ride.

Get off all of the hormones, lady, and let your body's hormone regulatory system heal.

EC
Gee Ellen she didn't say what position for the ride, did she? ;)
While the release of cortosol from involvement in a lawsuit might help regulate other hormones, at the same time, not having a case would result in more frustration in the long run and cost you a lot of money.
 

panzertanker

Senior Member
ellencee said:
Sweet Mother of God...I can not believe what I just read!
No sex drive because she's been in severe, disabling abdominal pain for, what? close to a year? Like her abdomen could really enjoy the ride.

Get off all of the hormones, lady, and let your body's hormone regulatory system heal.

EC
That is the EXACT reason why I offerred no advice to this thread. I felt the same way you did ellen, and I couldn't see any malpractice anyway.
A trial period to treat a possible dz state conservatively, versus invasive lap or exploratory is not malpractice; nor unreasonable.
OP, I hope you feel better, but I would seriously consider what ellen said.
 

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